0

About US

Wheelin with CF was created to spread awareness for Cystic Fibrosis throughout the offroad community and the active lifestyle community.


Alyssa Magro

Diagnosed officially with Cystic Fibrosis at two years old, I suffered from a lot of lung problems and scarring since birth. Cystic Fibrosis is a genetic disease you are born with that affects the lungs and every other organ in the body. Growing up with it, doctors told me I would not make it past 12 years old. Making past the doctors expectations time after time I began seeing how living your best life is so important. I finally got to the point where my lungs were so damaged and unable to work on their own well enough to live a normal life that I needed a double lung transplant. In 2015 I received my first double lung transplant. Now, this isn't a cure but a way to buy more time to live my life. After that transplant, I started Wheelin with CF to raise awareness for CF. I used my hobby of offroading to spread that awareness and my knowledge to others. I have met many people and families affected by CF through the offroad community. 3 1/2 years later, in 2018, my lungs started rejecting and I had to have a "redo" transplant. Since transplant is not a cure there are many things, like chronic rejection, that I have to worry about. Unfortunately that transplant was not as successful as the first and i began going to into chronic rejection a few months after recovering from the surgery. January 1, 2020 I received another, but rare, THIRD double lung transplant.  

When I was a kid I was very closed off with other people about my disease and had no outlet or people to share my stories or experiences with. I was even sometimes embarrassed for having CF because no one knew what I was talking about or going through. I want people especially kids, with CF to know that it is something that makes you a warrior. That they are not alone in this fight and there are people out there going through what they are too. We want them to live their life to the fullest!